At a loss of what to do

I’m not sure what to do or if anyone has insight. I have had pots now for going on 3 years. I’ve been on the same meds for it for over 2 years and truly has helped me so much and my hr is so much more stable and so is my bp. I’ve had periods where I barely know I have pots, and periods where I’m sick again. Recently I’ve been having a ton of flare ups and symptoms. I get purple hands. Ice cold hands. And then I’ll get burning hands where they are severely red and burning like I’m touch fire. Even at rest and it’ll stop at my wrist. I have food intolerances and reflux flare ups. I’ve been getting more shaky more often when I try to do stuff. I get non itchy pink blotchy rashes on abdomen and chest. I get burning hot pink red cheeks and sometimes nose. My joints and nerves hurt. My muscles twitch. My ribs hurt. I’m extraordinarily fatigued and brain fogged compared to before. And I’ve been having more flare ups. I just got an inflammation test and general Ana autoimmune test back as negative. In the past I’ve had elevated markers on celiacs and chrons. But didn’t end up having those diseases. I’m at a loss because tests keep coming back normal but my symptoms keep increasing.